A blind writer’s path to happiness – Which Mountain to Climb?

Happiness. What does that word mean to me? I’ve been thinking on this question of late. So far, I’ve decided that what happiness is for me is mostly what writing is not. Smiles, fun, good times shared with good people, feeling excited and grateful about life, looking forward to a new day, new adventures.

No, for me, writing, a solitary mentally taxing activity, is not much of any of these things.

Which tempts the obvious question, why do I choose to write if it doesn’t make me happy?

Because some things are simply work worth doing. Some things, like weeding a garden on a hot summer day, may not be pleasant or “happy” in the moment, but the results of the effort bring satisfaction later, sometimes days and weeks later, when the harvest finally comes in. Of course, you must like gardens to appreciate the value of weeding. I confess to liking stories and storytelling, which propels me to write in hopes of creating a good story someday.

Others have labelled such late returns as “delayed gratification.” I’m not sure it’s something to be proud of, but over the course of my life, I’ve become something of an expert in this area. As self-satisfying as this distinction has been at times, I’m now wondering why the hell I put off being “happy” so many times in hopes that my disciplined, focused, often martyr like work would later produce gratifying results. Such efforts included relationships that would have been more wisely abandoned in a matter of days instead of years.

This brings me to another “h” word that has shaped my life-

Hope.

yes, along with being a disciple of the “delayed gratification” mantra, I’ve also ben prone to the “hope for better” syndrome. the irrational belief that if I worked harder, longer, better at whatever, the clouds would part, the sun would shine, and life would be beyond wonderful.

Someone once told me, “there is no hope.” Please, let’s not get into a pedantic diatribe about this four letter word, perhaps we can agree that “Hope” means whatever you or I or anyone else wants it to mean. I think the afore mentioned person’s take on “hope” was that one just can’t sit on a rock “hoping” that it will start raining gold, life reality is that “hope” can inspire us but “Work” is what makes dreams happen. As usual, this is a rather simplistic statement, at least in my experience.

I’d “hoped” to be an Olympic volleyball player and I “worked” for years to achieve this goal. However, there was a fundamental flaw in my hoped for vision. I did not have the physical attributes required to be a world class volleyball player. For those not familiar with the sport, one of volleyball’s defining features is an eight foot net which divides the two opposing teams. In order to be successful at this sport, you must be able to jump high above this eight foot obstacle. As I barely stand over five and one half feet tall, I was at a distinct disadvantage compared to players towering over six feet. Sure, there are short guys who can nearly jump over tall buildings but I was not one of them. Hence, This life choice was not well grounded in reality.

Did this limit my happiness playing volleyball? Ultimately, yes, because I wanted to win as that seemed to be the measure of success and my lack of height often prevented me from winning. Still, and this is a further reflection on my tendency to hang on too long to things that aren’t working, I played for many years “hoping” to somehow defy reality and reach my goal. A wiser man described such acts of futility as insanity.

Which, finally, brings me to the ultimate subject of this post, which mountain to climb?

I’ve come to believe that if I can face a life challenge each day and create happiness in the process of working to achieve that goal, it’s a mountain worth climbing. Blindness has made such choices much simpler as I’ve had to accept that many things I used to do are not practical anymore. I don’t climb real mountains, sail oceans, or play any sort of sports involving balls which i cannot see. This void was depressing for awhile but eventually I followed my wife’s lead and began to simply enjoy the delights of our daily walks, the pleasure of biting into a tuna fish sandwich on toasted wheat bread, the enjoyment of conversation with neighbors. Then, there’s still writing and storytelling, work I do that is not often fun but eventually rewarding.

All said and done, this blind writer is finding his life path sprinkled more and more with bursts of happiness because I’m making smarter choices on which mountains to climb, and, most important, I’m simply enjoying climbing.

tio stib

Jul, 2017

You might also enjoy “Perfection,” “Fishing

Shape Shifting

the mirror of life stares back at me
a history of those times once free
the many men I’d tried to be
the many worlds I’d longed to see
so many new realities
I lived in hopes of finding me

some were good and some were bad
there were happy times and sad
joyful moments and some quite mad
questing for the dreams I had

some lasted days, some only hours
some grew from seeds to lovely flowers
but then the moment finally came
when each went up in spirit’s flame

was I born a vagabond
to never settle down for long
to never truly quite belong
heart pulled on by distant song

lovers, friends, and passersby
I’ve known them all
said my goodbyes
but now, as I face the end
I wonder if I’ll fly again

the caterpillar exists to eat
the pupa then goes off to sleep
and in its sacred, silky place
transforms into a different face

and so I build my new cocoon
as life within me starts to swoon
in hopes that with the coming moon
I will stretch my wings once more
and fly away to distant shores

so begins my every day
shape shifting in the cosmic play

tio stib
2016, 2018, 2019, 2020, 2022

You might also enjoy: Paddling a Submarine vs. Living an Authentic Life, A Friend Passes

Do It Anyway – Mother Teresa

I offer the following words from Mother Teresa as a source of inspiration in difficult moments-

for children in Calcutta:

              People are often unreasonable, irrational, and self-centered.  Forgive them anyway.

            If you are kind, people may accuse you of selfish, ulterior motives.  Be kind anyway.

            If you are successful, you will win some unfaithful friends and some genuine enemies.  Succeed anyway.

           If you are honest and sincere people may deceive you.  Be honest and sincere anyway.

            What you spend years creating, others could destroy overnight.  Create anyway.

            If you find serenity and happiness, some may be jealous.  Be happy anyway.

            The good you do today, will often be forgotten.  Do good anyway.

         Give the best you have, and it will never be enough.  Give your best anyway.

         In the final analysis, it is between you and God.  It was never between you and them anyway.

-this version is credited to Mother Teresa. It is thought to have been based on The Paradoxical Commandments by Dr. Kent Keith.

 

You might also enjoy: A Child’s Smile , If

My dementia Diary 14 – Pink Nails

 

Vietnamese. Spanish. english. Put a blind guy in the middle of this language chaos and what do you get?

Pink nails, or so I’m told.

I am realizing that my wife is less and less able to care for her personal hygiene, from remembering to take showers to brushing her teeth. She has been meticulous about such things in the past, so I’m  always surprised to discover such care is not happening. the remedy is usually a nudging, a gentle reminder, and she will spring into action, smiling. Yes, I am blessed most things are still easy.

But her nails are a different matter.

Up until now, she has done her own finger and toe nail care, cutting, filing, and painting them, an activity she has much enjoyed. However, she recently held out a hand to me and asked me to touch it. Doing so, I felt her nails and realized they were quite long, much longer than she usually kept them. It had probably been weeks since they’d been trimmed. Obviously, she wasn’t doing this herself anymore.

Off we went to the local nail salon. We walk by it often and greet the workers who sit outside lunching, all friendly and all Vietnamese. Upon entering, I explained that my wife needed a manicure and pedicure and pink was the preferred color for her nail polish. There was a response in strange words which I took as affirmative. then, I sat nearby as two young women babbled to my wife in Vietnamese and she babbled back in Spanish. I was quite content to keep my English out of the conversation, trusting my wife’s needs would be met as women seem to be able to understand each other no matter the language differences.

A short time later, she waved her hands gleefully in front of me and I, sensing they must now look beautiful, told her so, feeling good that, once more, we’ve successfully adapted to life’s continuing changes.

Yes, her nails are now likely pink, but I don’t really care, she’s happy. No, I was not tempted to have my own nails done. Blindness gives me a good excuse to avoid that. Besides, I don’t look good in pink, or so I’m told.

tio stib

You might also enjoy: My Dementia Diary

My Dementia Diary 13 – This Child Who Once Was Woman

she laughs at dancing butterflies
smiles at babies passing by
clings to me when brought to cry
this child who once was woman

her zest is sparkling innocence
a love of life without a fence
a mind released from circumstance
this child who once was woman

a singing bird
a playful word
the mirth of anything absurd
she hugs
she screams
she loves 
she beams
this child who once was woman

my heart beats glad, she is such joy
reminds me when I was a boy
of times preceding plots and ploys
this child who once was woman

the change, I was slow to see
as fog crept over memories
and here is all that she can be
this child who once was woman

now, I hold her close and dear
do my best to soften fears
not to shed a single tear
make the most while she is here
my wife who once was woman

tio stib

You might also enjoy: My Dementia Diary

My dementia diary – Beginnings

Five years ago this month, two things happened which changed the course of my life. I lost my sight and my wife began to lose her mind.

I’d already lost vision in one eye when, one day, my other eye clouded over. For the second time, a rare blood clot condition had fried my remaining healthy  optic nerve. The same week, my wife had a seizure which resulted in total amnesia. Fortunately, within twenty four hours, her memory came back, but her mental ability to reason, remember, and connect with reality began to deteriorate.

Sudden blindness left me disoriented and depressed. It was months before I was able to start on the path towards re-inventing my life with the help of folks from California’s rehabilitative services program. While  riding the emotional rollercoaster of adapting to my new world, my wife was also changing.

More and more, she was showing the signs of dementia, repeating questions many times and forgetting recent events. Over time, the dementia symptoms became more obvious. Her ability to plan and organize disappeared. Her creative activities got simpler. Where she once enjoyed abstract painting, she now spends hours with coloring books, her mind unable to deal with mixing paint colors.

She has become a child who loves life, no longer distracted by adult worries or conceptions of what life should be. I deal with practicalities, grocery shopping, money matters, scheduling. We have found a new balance, becoming a unique partnership of attitudes and abilities..

Do I miss the dreams I had for our life? All the time. I miss the adventures we had and the ones I’d hoped to share. I miss saying, “let’s go!” jumping in the car and taking off to nowhere. But, as the popular saying goes, “it is what it is.” The work now is making the most of the life  we still have.

That’s a daily challenge, one I’m going to explore in writing this journal. I invite you to join us as we walk together, blind and demented, down the road of life.

 

this child who once was woman

she laughs at dancing butterflies
smiles at babies passing by
clings to me when brought to cry
this child who once was woman

her zest is sparkling innocence
a love of life without a fence
a mind released from circumstance
this child who once was woman

a singing bird
a playful word
the mirth of anything absurd
she hugs
she screams
she loves
she beams
this child who once was woman

my heart beats glad, she is such joy
reminds me when I was a boy
of times preceding plots and ploys
this child who once was woman

the change, I was slow to see
as fog crept over memories
and here is all that she can be
this child who once was woman

now I hold her close and dear
do my best to soften fears
not to shed a single tear
make the most while she is here
my wife who once was woman

tio stib
2017

You might also enjoy: First Snow, Forgiveness, the Greatest Gift

Stop Stealing Dreams!

What are schools for? My parents never asked themselves this question. I didn’t until years after being shuttled through the public education system in America. It took a lot of life learning after that for me to un-school myself from all the limiting beliefs and behaviors that I’d been brainwashed with.

Seth Godin is a fierce advocate for conscious awareness of the impacts of public education on young minds. His manifesto, “Stop Stealing Dreams,” details his thoughts on the dangers of a public education system designed to build willing workers rather than creative and critical thinking individuals.

Here’s Seth’s TedX talk. I hope you watch and then ask yourself, “what are schools for?”

Here’s the link to Seth’s blog with more information on “Stop Stealing Dreams”

 

Your life is your responsibility!

Tio Stib

2017

 

this child who once was woman

she laughs at dancing butterflies
smiles at babies passing by
clings to me when brought to cry
this child who once was woman

her zest is sparkling innocence
a love of life without a fence
a mind released from circumstance
this child who once was woman

a singing bird
a playful word
the mirth of anything absurd
she hugs
she screams
she loves
she beams
this child who once was woman

my heart beats glad, she is such joy
reminds me when I was a boy
of times preceding plots and ploys
this child who once was woman

the change, I was slow to see
as fog crept over memories
and here is all that she can be
this child who once was woman

now, I hold her close and dear
do my best to soften fears
not to shed a single tear
make the most while she is here
my wife who once was woman

tio stib

2017

Categories: life journey

Tags: love, marriage, relationships, Alzheimers, dementia, blind poet, blind writer, happiness, joy, fulfillment, blind blogger, aging, partners, life journey