My dementia Diary 14 – Pink Nails

 

Vietnamese. Spanish. english. Put a blind guy in the middle of this language chaos and what do you get?

Pink nails, or so I’m told.

I am realizing that my wife is less and less able to care for her personal hygiene, from remembering to take showers to brushing her teeth. She has been meticulous about such things in the past, so I’m  always surprised to discover such care is not happening. the remedy is usually a nudging, a gentle reminder, and she will spring into action, smiling. Yes, I am blessed most things are still easy.

But her nails are a different matter.

Up until now, she has done her own finger and toe nail care, cutting, filing, and painting them, an activity she has much enjoyed. However, she recently held out a hand to me and asked me to touch it. Doing so, I felt her nails and realized they were quite long, much longer than she usually kept them. It had probably been weeks since they’d been trimmed. Obviously, she wasn’t doing this herself anymore.

Off we went to the local nail salon. We walk by it often and greet the workers who sit outside lunching, all friendly and all Vietnamese. Upon entering, I explained that my wife needed a manicure and pedicure and pink was the preferred color for her nail polish. There was a response in strange words which I took as affirmative. then, I sat nearby as two young women babbled to my wife in Vietnamese and she babbled back in Spanish. I was quite content to keep my English out of the conversation, trusting my wife’s needs would be met as women seem to be able to understand each other no matter the language differences.

A short time later, she waved her hands gleefully in front of me and I, sensing they must now look beautiful, told her so, feeling good that, once more, we’ve successfully adapted to life’s continuing changes.

Yes, her nails are now likely pink, but I don’t really care, she’s happy. No, I was not tempted to have my own nails done. Blindness gives me a good excuse to avoid that. Besides, I don’t look good in pink, or so I’m told.

tio stib

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Floating

floating in a tranquil sea
my thoughts drift to what might be
concerns and chaos slip away
as I inhale a perfect day

clouds above sail slowly by
white against an azure sky
I close my eyes and feel the grace
the sun’s caress warm on my face

years of pain
the tides of time
have scoured the beaches
of my mind
at last, surrendered
to my fate
I no more struggle
with death’s date

floating in a tranquil sea
I smile and simply
let it be

tio stib
2015, 2018

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Why I Like Being Blind

No, in truth, I seldom like being blind. However, there are moments when I recognize that blindness has some benefits. Here are my top ten reasons to like being blind-

  1. When I get up in the morning, I can’t see how old I’m getting in the mirror.
  2. It’s nice being personally guided through airport security and other checkpoints, avoiding long lines of annoyed travelers.
  3. I don’t have to pretend I’m ignoring people I don’t like. I really can’t see them.
  4. I don’t need to shave every morning, or for that matter, worry about wearing matching socks. Yes, I admit age has something to do with this disregard for fashion.
  5. I can now unabashedly ask for help, paying no attention to my previous suffocating shyness. I need all the help I can get.
  6. I’m no longer asked to help people move. My history of breaking other people’s valuable objects has nothing to do with this.
  7. I now have an excuse for talking to myself. I’m talking to my computer.
  8. I now have a socially acceptable excuse for eating with my fingers. It’s the most effective way to get food into my mouth.
  9. I now have a more acceptable reason than being drunk for tripping over curbs. Yes, likely I’ve been drinking, but now I’m blind drunk. .
  10. 10. When late for appointments, it’s now much easier to say “Sorry, got lost.”

I’m always seeking more reasons to be happy with blindness, please add yours as a “Comment” below.

tio stib

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My Dementia Diary 13 – This Child Who Once Was Woman

she laughs at dancing butterflies
smiles at babies passing by
clings to me when brought to cry
this child who once was woman

her zest is sparkling innocence
a love of life without a fence
a mind released from circumstance
this child who once was woman

a singing bird
a playful word
the mirth of anything absurd
she hugs
she screams
she loves 
she beams
this child who once was woman

my heart beats glad, she is such joy
reminds me when I was a boy
of times preceding plots and ploys
this child who once was woman

the change, I was slow to see
as fog crept over memories
and here is all that she can be
this child who once was woman

now, I hold her close and dear
do my best to soften fears
not to shed a single tear
make the most while she is here
my wife who once was woman

tio stib

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Shape Shifting

the mirror of life stares back at me
a history of those times once free
the many men I’d tried to be
the many worlds I’d longed to see
so many new realities
I lived in hopes of finding me

some were good and some were bad
there were happy times and sad
joyful moments and some quite mad
questing for the dreams I had

some lasted days, some only hours
some grew from seeds to lovely flowers
but then the moment finally came
when each went up in spirit’s flame

was I born a vagabond
to never settle down for long
to never truly quite belong
heart pulled on by distant song

lovers, friends, and passersby
I’ve known them all
said my goodbyes
but now, as I face the end
I wonder if I’ll fly again

the caterpillar exists to eat
the pupa then goes off to sleep
and in its sacred, silky place
transforms into a different face

and so I build my new cocoon
as life within me starts to swoon
in hopes that with the coming moon
I will stretch my wings once more
and fly away to distant shores

so begins my every day
shape shifting in the cosmic play

tiio stib
2016, 2018

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Life Is Like A Broken Egg

Yesterday I dropped an egg. Actually, I didn’t drop it, I surmise it rolled unseen off the counter. I heard a noise near the floor. In a microsecond, my brain flashed through the possible causes of such a noise. At about the same time, my brain reached another conclusion. The toes on my right foot were also sending signals to my sensory center. Something gooey was down there.

A broken egg!

As I groped around cleaning the shattered shell from the floor and then its contents from my foot, I pondered the symbolic relevance of this event in my life.

Yes, I tend to get lost in my own world at times.

Perhaps, I wondered, my life is like a broken egg. Here I am, marching along unseen by most of the world and then, crash! I splat into eternity, possibly making a mess for someone else to clean up as I exit.

That’s one possibility.

My mind drifted off in other directions. I remembered a structures class where we dropped eggs in specially designed containers from a third story balcony. The object, of course, was to preserve the integrity of the egg. The challenge was to do this with as little material as possible. It’s no problem to put an egg in a big box of bubble wrap and drop it unfazed onto the floor below. The trick is to drop the egg, mostly naked, with the same result. Similarly in life, I thought, there’d been times I’d insulated myself with such things as work and selfish interest so that the rest of the world couldn’t touch me, and I couldn’t touch the people who cared about me because I was too closed off from them.

There have been naked opposite times when I was raw and open, times when I felt that life had run me over and left me for roadkill. Going bankrupt and watching friends die come to mind.

My lesson from these experiences: Sometimes it’s good to overprotect. Sometimes it’s good to hurt. The pain reminds me of happier times.

All this you may say, from simply having an egg hit the floor? Yes, and there’s more.

What if I’m like an egg? A hard, durable shell on the outside and a soft sticky mess inside. My outside, that part of me I show the world, is a lot like the shell of an egg. It’s quite resistant to general pressures, quite strong when grasped firmly. But, the shell has its weak points. It doesn’t do well with pressure applied to a single point. Yes, I have my buttons. I hate cleaning up other people’s messes, such as wiping up their broken eggs. I have no tolerance for fools, which is why politics disgusts me. The egg shell is also brittle. It doesn’t do well when landing on sharp objects. I explode when subject to sharp noises, and am even more violent when subject to the sound of barking chihuahuas.

All this from a broken egg.

My last thoughts on this surprisingly deep self-dialog. How do you crack an egg? I use two hands. Even so, I often make a mess of this simple action, sometimes striking a nearby surface so hard that the shell cracks open and leaves a trail of egg goo from there to the frying pan. (This is a clue to what I usually do with eggs, hinting at my limited cooking repertoire). Sometimes, when my mind is somewhere else such as now, I fail to hit the egg hard enough,it doesn’t crack, waking me from my reverie to initiate another strike on the shell. This usually results in the previously mentioned egg goo trail.

What does this say about my life? I tend to be overly cautious and conservative. Do I lack faith in my creative abilities to expand my egg cuisine? Maybe I’m just lazy.

One of my goals for the New Year is to learn how to crack an egg with one hand. I think this may take quite a few eggs. I’ve heard that gin fizzes are a good use for egg whites and an easy way to forget about life’s deeper concerns.

Like how my life is like a broken egg.

tio stib
2014, 2016, 2018

First published in January, 2014, but since I haven’t mastered the one handed egg crack yet, I decided to publish this again to remind myself of goals I’ve yet to attain.

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My Dementia Diary 12 – My Grandfather’s Clock

There is a clock sitting on the shelf near our bed. It belonged to my mom’s dad and was passed on to me, making it my grandfather’s clock. Over a hundred years old, this timepiece is relatively small, meant to be set on a fireplace mantle, but it has a surprisingly vibrant chime. There are no batteries within, its mechanism driven by a coiled brass spring, which I wind weekly with a dozen turns of a key. For this effort, I am rewarded with a melodious chime counting out each and every hour.

I take comfort from these chimes, from the tick-tock of the ever swinging pendulum, an aroused awareness that time is now. I wonder if my grandfather, my mother, other family members, felt a similar connection.

I’ve lived more than 600,000 hours so far, a surprising number when I attempt to remember the breadth of my life experience. what happened to all those hours? The more important question, what will I do with the hours I have left?

Each tick of that clock is a moment I will never have again.

How many more chimes are left in my life?

How blessed I am to have had so many hours of being.

As my wife sleeps peacefully beside me, I again find comfort in the tick-tock of time, past, present, and future, and I drift away in hopes of hearing the morning chimes once more.

There’s an old folk song that beautifully expresses my sentiments, perfectly named, “My Grandfather’s Clock.” Here’s a link to a Johnny cash rendition

tio stib

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