Insomnia

there are moments when
I dream in peace
a mind released to roam
then others when
the clock grinds on
and night becomes a tomb

I lay now in eternal night
awaiting mindless deep
a craving need to somehow get
a decent hour’s sleep

tio stib
2015, 2018, 2019

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My Dementia Diary 83 – Hold On

hold on

hold on while her hand
is still soft
still warm
still pulsing with
the memories of golden times

hold on

hold on to the fragments
the scant threads of hope
that somehow the disease
the unseen darkness tearing her away
will disappear

hold on

to the magic of her smile
to the joy of her laughter
to her fingers caressing my face
to the thrill of her scent in my soul

hold on
to the words she whispers in my ear

hola amor

hold her close on that seaside bench
as waves lap gently at our feet
and there is only now and us and love

forever

hear the call
a lonely train
bound for another world

hold on

it will not stop here today

tio stib

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Breaking Trail

in winter stillness
ancient aspens watch
a chickadee flitting past
feathered music
bouncing
over infinite blue

alone
atop the buried meadow
a man paused
turned
looked back at the trampled snow
the trail of footsteps
each print a shadowed testament
to sweat falling from his brow

all he could see was white
reflected memories in a sea of snow
light’s harsh truth
stinging weary eyes

a deep sigh
a gasp of icy air
a hesitation in the heartbeat of being

a smile

he chooses life

again

tio stib

2016, 2018, 2019

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The Challenge of Climbing Mountains

most think the challenge of climbing mountains
is reaching the top
sweating
aching
heart pounding
pushing past fear
step by step
to finally stand victorious
in the rare air
above the clouds of ordinary being
surrounded by distant views
of unclaimed summits

but
with each descending step
the real work begins
returning to the valley of everyday existence
the spirit begins to shrink
atrophy
for it can no longer be fed
by ordinary life

the real challenge of climbing mountains
is never surrendering the summits of our dreams
to stand alone
bold and free
with only mountaintops
for company

tio stib, 2016, 2019

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My Dementia Diary 82 – Islands of Loneliness

In the 2000 film “Cast Away,” Tom Hanks stars as the survivor of a plane crash who finds himself alone on a deserted island. in the Pacific Ocean. After weeks of working to physically survive, he then faces the deeper  challenges of human existence, loneliness, hope, and faith.

To deal with his isolation, he begins a relationship with a volleyball, which he names Wilson and thereafter discusses everything going on in his mind with this unspeaking acquaintance. His hope is bolstered by a picture of the girlfriend he dreams of marrying. His faith in his ability to adapt and solve life’s problems wanes in time and, giving up, he tries to kill himself. Fate steps in, he fails, then recommits to finding a way off the island.

Yes, he escapes, but the ending isn’t what you’d call “Hollywood Happy.”

How do my wife and I compare to Hanks and his cast away life?

Certainly, we are cast aways too, a couple living with a disease that nobody around us wants to talk about.

Dementia. It’s difficult, it’s depressing, it’s death.

Even though we’re surrounded by a sea of other souls, none of them want to stop chasing their own dreams to visit our little island. True, I was one of them once.

So, like Hanks, we, mostly me, adapt. For now, I’m better off than Tom, who only had a volleyball to talk to. My wife can still smile, hug, and babble back at me. Also, the diet on our island, with occasional burritos and ice cream bars, is much better than Hanks menu of crunchy roasted crabs. 

However, like millions of other caregivers and their dementia stricken loved ones, we won’t be escaping our island of loneliness to return to the wonders of a world left behind.

No “Hollywood Happy” endings here. But I’m keeping the faith that there will be moments of beauty, grace, and love.

That’s the best I can do.

tio stib

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Breakfast of Memories

for fifty years they’d each returned
back to the same cafe
gathered round the same table
these small town knights
slowly sipping coffee
reviving the Camelot of their youth
alive again
in a breakfast of memories

stories swirled
more smiles than scars
the pranks, the mindless adventures
girlfriends real, love imagined
mountains climbed and races won
friends recalled and gone

they talked of how they’d loved this place
had never thought to leave
but life and time had swept them off
to chase their separate dreams

not one head turned to watch them go
the gray men and their ghosts
and silence roared to fill the void
of legends lost to most

tio stib

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My Dementia Diary 81 – Today’s Gratitude List

It’s too easy to forget all we have to be grateful for so I’m stopping to do so today-

Today’s Gratitude List-

My wife’s constant joy for life, and, in spite of her diminishing mental capacity, her ever present love radiating out to everyone she meets.

Our excellent physical health, strong and vital bodies that take us out into the world on foot each day.

Family and friends who reach out regularly to share their love and care for us.

A small town life that is safe, convenient, and filled with beauty.

A home that fits us in every way.

Money in the bank, no debts, and enough income each month to meet expenses.

Health insurance, including a caring and intelligent doctor who cares for both of us.

Advanced technology that lets us connect with friends and family and allows me to write and publish for a worldwide audience.

Fresh tomatoes for BLTs.

The smell of roses by the door.

My wife’s delighted descriptions of hummingbirds buzzing about the feeder.

A treasure chest of wonderful memories to light up dark days.

Lastly, dementia is taking my wife’s mind slowly, enabling us to make the most of the life we still have.

Yes, I could go on and on, but I’ve written enough, thought enough, to be reminded that despite our life challenges, we’ve got a lot of good going for us.

tio stib

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