Fantasyland is Closed Today

there are dreams 
and there are fantasies

the first, possibilities
the second, delusions

but what is the difference?
what is the line that, once crossed
leads to a spiraling descent into
frustration, depression, 

emptiness

What is the difference between fantasies and adventures?

in the beginning, perhaps nothing
but
somewhere along the way
you begin to hear a voice
a stirring
a thought

a question?

and, if you stop and pay attention
the voice gets louder

until
finally
you open your mind to see
the sign in front of your life

Fantasyland is closed today


tio stib

The Upside of Down, Making Light of Loneliness

Lately, I’ve noticed many lonely souls hanging out in sad solitude. The single seaters at Starbucks poking at their computers or pretending to read the newspaper, the odd person eating alone at restaurants, the commuter train filled with folks entranced by their mini-video screens with nary a glance at fellow travelers. It’s easy to spot the single folks, especially if you are, like me, one of them. Which makes writing this post so easy.

Let me put a different spin on loneliness and offer its advantages:

1. Living alone means making the bed is optional rather than submit to the control freak compulsions of a significant other.

2. Bing alone means that making pancakes for breakfast on Friday at 9 p.m. requires no excuses.

3. Lonely people don’t have to share the last cookie not to mention feel the least bit guilty eating it.

4. Being alone means you can squeeze the toothpaste tube any darn way you want.

5. Alone means you can watch any television channel you want or those dvd’s you’ve been too embarrassed to share, and drink all the beer or eat all the ice cream you feel like in the comfort of your underwear,  without any snarky feedback except perhaps from the pleading eyes of your dog. Okay, if you’ve got a dog you can’t possibly be lonely and don’t need to read the rest of this list.

6. Being alone means you need not explain to anyone just why you feel like blowing up balloons and then stoping on them after a trying day at work.

7. Alone means you can change the color of lipstick you wear every day without your room mate asking “Is something the matter?”

8. Single means that when you order a medium pizza you suddenly have enough “food” to last two entire days.

9. Being alone makes grocery shopping so much easier. “Did she say Toasty Crunchies” or was it “Chocolate Crispies?”

10. There is a singular bliss in solitude knowing that you can fart however and whenever you want.

11. Sleeping alone means you don’t have to pretend you are sleeping when he/she comes home late wanting to talk. Another plus on the subject of sleep is that alone means you don’t have to worry about snoring, unless, like me, you snore so loud you wake yourself up.

12. Being alone means you already have the one audience who will always listen to you. Yourself.

13. Perhaps the greatest gift of being alone is that now you are absolutely, totally available to whatever opportunity comes along. This means that when that elder gentleman in the tuxedo and top hat walks up to lonely you sitting by yourself in the coffee shop and says, “Excuse me, I can see that you are lonely and my anonymous employer has authorized me to hand you this round the world travel ticket including a check for $500,000 to cover expenses. The only stipulation is you must leave this week and you must travel alone.”

Of course, you can have only one answer-

“Me?”

And lastly, being “alone” makes you part of one of the world’s biggest ironies-

Consider this, you are sitting in solitude, feeling down, hoping that your life will change. At this very moment, all around the planet, there are millions of fellow loners just like you, with similar thoughts. Conclusion: you are actually surrounded by a sea of fellow solos. None of you are even close to alone.

I’m waiting for someone to stand up in Starbucks and shout, “Hey! Is anybody else lonely here?”

I’m listening…

from Tio Stib’s archives, the empty times before he met his wonderful wife. No, it wasn’t at Starbucks.

 

Excuses

damn sick, you know, that awful flu
slipped and fell on doggy do
triple booked, what could I do
have you met the new guy, Lew
slipped out to sip a little brew
Giants lost, the Seahawks too
burned the Sunday evening stew
blame it on my low I.Q.
what’s with all the ballyhoo
just what did I promise you

really

what else is new

tio stib
2017, 2018

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My Dementia Diary 16 – Good News, Bad News, Where is My Solitude

For years, I dreamed of a partner with whom I could share all of life, the joys and the hardships, someone who would be willing and able to take off on a moment’s notice to places unknown simply because it seemed to be a great idea at the time.

Finally, I was blessed with just this partner, and, for one year, we had the magic life together that I’d always dreamed of.

That was a year of unsurpassed bliss and those memories still bring me smiles. However, as so often happens, our road together took an unexpected turn. I lost my sight and she began losing her mind.

And, so, we’ve adapted.

We no longer drive miles from home, but limit our roaming to walking local walking wanderings. It has gotten to the point that I no longer feel comfortable leaving her alone, and, as I’m her only caregiver, this means we’re together all the time, always. Fortunately, my wife has a naturally cheerful disposition and she’s easily guided into whatever activity we need to be doing, from daily walks to grocery shopping. The biggest challenge is my personality, the fact that, for most of my life, I’ve enjoyed times of solitude.

While I’ve treasured sharing adventures with friends, from sailing trips to hikes to new restaurants, when no one was available, I went off on my own. And I loved it!! As has been often shared by others, solitude is not loneliness, it is the beauty and peace of being alone. I have fond recollections of such solitude times, from solo hikes and sailing trips to simply sitting on a beach at sunset. Quiet moments when I could hear stars talking to each other.

Given my wife’s new need for constant companionship, I am finding new ways to give myself the gift of solitude. As she has the envious ability to fall asleep in seconds, I often listen to those imagined stars deep into the night waiting for drowsiness to creep over my mind. Or, I’ll sit outside in the morning sunshine, letting the sweet scent of nearby Jasmine float through me, recalling other dreams of times gone by.

Solitude is soul food, and, as always, it’s up to me to feed myself.

tio stib

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My Dementia Diary 15 – Ice cream

There is one thing my wife’s mind continues to remember with humorous frequency.

Ice cream.

She will forget what I told her five minutes ago, forget birthdays, including her own, but she does not forget ice cream. In the middle of the afternoon, when it’s time for a break, she will approach and coyly ask,

“ice cream?”

Hard to say “no” to such childlike innocence. And, so, we walk down to our favorite ice cream stop at the local pharmacy. She’s all smiles, giggling and excited, even though she’ll ask me several times on the way

“where are we going?”

she doesn’t remember a favorite flavor, but tries to pronounce all the names at the ice cream counter. animal Circus. cookie dough. Pistachio. Butter Pecan, and on, and on. She can’t make up her mind so I’ll pick one for her, knowing all that matters is an ice cream cone in hand.

then we wander out  to sit on a sun drenched bench and savor our treats, one delicious lick at a time. 

And I say a silent prayer of gratitude that she can still come to me and ask,

“ice cream?”

tiostib

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My dementia Diary 14 – Pink Nails

 

Vietnamese. Spanish. english. Put a blind guy in the middle of this language chaos and what do you get?

Pink nails, or so I’m told.

I am realizing that my wife is less and less able to care for her personal hygiene, from remembering to take showers to brushing her teeth. She has been meticulous about such things in the past, so I’m  always surprised to discover such care is not happening. the remedy is usually a nudging, a gentle reminder, and she will spring into action, smiling. Yes, I am blessed most things are still easy.

But her nails are a different matter.

Up until now, she has done her own finger and toe nail care, cutting, filing, and painting them, an activity she has much enjoyed. However, she recently held out a hand to me and asked me to touch it. Doing so, I felt her nails and realized they were quite long, much longer than she usually kept them. It had probably been weeks since they’d been trimmed. Obviously, she wasn’t doing this herself anymore.

Off we went to the local nail salon. We walk by it often and greet the workers who sit outside lunching, all friendly and all Vietnamese. Upon entering, I explained that my wife needed a manicure and pedicure and pink was the preferred color for her nail polish. There was a response in strange words which I took as affirmative. then, I sat nearby as two young women babbled to my wife in Vietnamese and she babbled back in Spanish. I was quite content to keep my English out of the conversation, trusting my wife’s needs would be met as women seem to be able to understand each other no matter the language differences.

A short time later, she waved her hands gleefully in front of me and I, sensing they must now look beautiful, told her so, feeling good that, once more, we’ve successfully adapted to life’s continuing changes.

Yes, her nails are now likely pink, but I don’t really care, she’s happy. No, I was not tempted to have my own nails done. Blindness gives me a good excuse to avoid that. Besides, I don’t look good in pink, or so I’m told.

tio stib

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My Dementia Diary 13 – This Child Who Once Was Woman

she laughs at dancing butterflies
smiles at babies passing by
clings to me when brought to cry
this child who once was woman

her zest is sparkling innocence
a love of life without a fence
a mind released from circumstance
this child who once was woman

a singing bird
a playful word
the mirth of anything absurd
she hugs
she screams
she loves 
she beams
this child who once was woman

my heart beats glad, she is such joy
reminds me when I was a boy
of times preceding plots and ploys
this child who once was woman

the change, I was slow to see
as fog crept over memories
and here is all that she can be
this child who once was woman

now, I hold her close and dear
do my best to soften fears
not to shed a single tear
make the most while she is here
my wife who once was woman

tio stib

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Taxi School-Chapter 2

Introduction

Al McGinty, “Gint” as he is known to friend and foe, does not like change. He’s driven the same cab for thirty years, eats at the same cafe every morning, can’t say a nice word about politicians or lawyers, and worships New York City. He has a unique lifestyle, one true friend, Wally, and reads the New York Times each evening with a glass of brandy and a Cuban cigar. His is the perfect world.

But that’s about to change.

Gint is the main character in my novel, “Taxi School,” and you can follow Gint’s story as his life explodes and he is forced into one of Nature’s three ultimate choices-

Adapt, migrate, or go extinct.

I’ll be publishing a new chapter each week, hope you follow along. comments, on any line, are always appreciated.

tio stib

CHAPTER 2

“Jesus, Johnny, you got nothing better to do but read “Playboy,” blurted Gint as he burst into the office of Carlutti’s Car repair, “I can see you have a demanding schedule, but I need my cab, preferably today.”

ir.

Johnny, a good looking guy with a tanned face and a full head of slightly grayed black hair, was not the least bit moved by his surprise visitor. He remained seated in his swivel chair, boots up on the desk. and raised his magazine for Gint to view.

the title read, “World Traveler.”

“Lulu wants to get out of town,” said Johnny, “and what Lulu wants, Lulu gets.”

“As well she should,” replied Gint, remembering that  Lulu had been the hottest chick in the old neighborhood. She still turned heads. Lulu and Johnny had been lifelong sweethearts.

“As for my demanding schedule, hell, Gint, your Checker cab is about the only automobile I can work on anymore. These days, car repair is all about computers, and I’m not going there. J3 loves that crap and he can have it.”

J3  was John Carlutti  the third, the youngest of the male Carlutti line to work at the repair shop, and the kid Johnny yelled at as he opened the door to the shop, over the noise of air wrenches and occasional curses, “J3, move your sorry ass and pull Mr. McGinty’s cab out front!”

Gint saw a kid with a mop of black hair and grease on his face look up from under a car hood, smile, then dash outside. then Gint saw something familiar.

“Hey, Johnny, isn’t that Joey’s cab?”

Yep, he left it here last week. Asked me to sell it.”

“What?” Gint cried out, turning to Johnny in disbelief, “he can’t do that!”

“Well, he sure as hell did,” said Johnny, “came by, said he was hanging it up, asked me to send the sale money to an address in California.”

Stunned, Gint sat in a chair beside Johnny, speaking softly, “we’ve been in the business together for thirty years, bought our cabs together. We’re partners, a team, the last two Checker cabs in New York City.”

“Not any more, Gint, now you’re a team of one.”

The office street door opened, and J3 stuck his head in, “here you go Mr. McGinty, thanks for using Carlutti’s Car Repair.”

Gint mindlessly shook the kid’s hand and walked out.

On the sidewalk, gint whistled once and Wally came bounding down the street. Gint opened the driver’s door and the two climbed in to the last Checker cab in New York City.

-to be continued-

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My Dementia Diary 6 – A Shared Life

“for better for worse, in sickness and in health, ’til death do us part.”

These thoughts are part of many marriage ceremonies, I’ve committed to them myself. Yet, until recently, I’ve never fully grasped their significance.

In the past, the bumps on our life road were never terminal, there was always a way out, there was always tomorrow, things would get better, time was on our side.

That’s not our reality now. Alzheimer’s dementia is no game of the day, not a trivial illness that will go away, we’ve now entered a path that is one way only, and it well end only one way.

Most of us take all measures to avoid the subject of death and dying. In younger years, I was certainly that way. However, later in life, death has knocked on my door several times and I’ve learned to open my heart and appreciate the gift of being with other’s as they end their life journey. Is this tough work? Beyond words. But, so are the rewards.

Being blind has humbled me. Blindness took away many freedoms, many activities and experiences I often took for granted. Our life now, our shared life, is simple. There are no complicated agendas, no long “to do” lists. We get up and enjoy the wonders of a new day. I listen as my wife delights in describing hummingbirds hovering at the feeder, as she greets passersby and talks to children, and reminds me we have to buy more cookies.

Our shared life has become a series of special days. Our special days have become a series of precious moments.

tio stib

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