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My Dementia Diary 100 – Both Sides Now

It has been raining in our town, a string of wet, dark, gloomy days that make it easy to stay inside, easy to sit sipping tea wondering about life, wondering how I’ve come to be alone, how I’ve loved my wife with all my heart but that was not enough to save her from dementia.

The words of Joni Mitchell come to mind-

Tears and fears and feeling proud,

To say “I love you” right out loud

Dreams and schemes and circus crowds

I’ve looked at life that way

But now old friends they’re acting strange

They shake their heads, they say I’ve changed

Well something’s lost, but something’s gained

In living every day.

I’ve looked at life from both sides now

From win and lose and still somehow

It’s life’s illusions I recall

I really don’t know life at all

-lyrics from “Both sides Now” by Joni Mitchell, 1968

No, I really don’t know life at all.

tio stib

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My Dementia Diary 99 – From a Distance

It has been weeks since our daughter has taken my wife to live with her. Weeks of sorrow, tears, and loneliness, but also time to rest, to heal, to wonder. 

Did I do my best to care for my wife?

What about all those explosions, those moments of frustration? 

Yes, I slipped and fell many times, but I got back up, I learned to be more patient and understanding with her and with myself. 

I’ve learned that love is not perfect. We do our best to be loving, to care for those dear to us, but sometimes actions don’t measure up to intentions.

Sometimes we fail to be as loving as we want to be. I certainly did. Yet, on a journey such as caregiving for a loved one with dementia, such failures must be forgiven because most of us have never had to care for someone whose mind is being eaten away by dementia even though their body seems to be unaffected.

This has been my biggest challenge. I’d be walking with my wife, holding her hand, hearing her whistling in delight at passing birds, and think to myself, what could possibly be wrong.

And then she’d ask me if we could go visit her mom while we were out walking, the mom who lives two thousand miles away.

She’s here but she’s not.

And the part of her who isn’t here will never be back again.

It seems there are some things we will never understand. I don’t understand dementia and why it had to take my wife away. 

But, I do know I love her dearly and all I can do is care for her as best I can. 

tio stib

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My Dementia Diary 98 – Muddy Waters

swirling sadness surrounds my soul
muddy waters have drowned my heart

in time
the flood of tears will retreat
the clouds of sorrow melt away

in time
the waters will clear

in time
I will drink from the river of life

once more

tio stib

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Unknown's avatar

My Dementia Diary 97 – My Daily Lama

she smiles
they laugh
and lives are lighter

I follow in her footsteps

Maria
my wife
the Child Buddha

my daily lama

her memory is the light
guiding me forward

tio stib
2017, 2020

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Unknown's avatar

My Dementia Diary 96 – Lost in Quiet

in the wake of her passing
swirls of memories

silence

only shadows of her smile
only echoes of her laughter

I am lost in quiet

tio stib

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My Dementia Diary 95 – Returnings

“Where’s your wife?”

The grocery clerks, the drug store help, coffee shop baristas, deli servers, librarians, they all ask the same question. When I return now, alone, to the places we frequented together, they all expect to see the blind guy and his ever cheerful wife. 

But she’s not there, so they ask,

“Where’s your wife?”

And I try to answer, tear up, reach out to hold her hand that isn’t there, start crying, because I’m asking the same question,

Where’s my wife?

tio stib

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Unknown's avatar

My Dementia Diary 94 – Tearfully Treading Water

Tennyson wrote
“tis better to have loved and lost
than never to have loved at all”

I have loved and lost

left tearfully treading water
in an infinite ocean of loneliness

tio stib

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