We seldom notice the small changes in those close to us, but over time, these changes add up. Suddenly, we are aware of differences. Our children have grown up. Our parents have grown old.
My wife’s dementia has deteriorated.
She is more confused, no longer remembering where our children live, forgetting names and places. She is more fearful, often upset by imaginary ghosts. She needs more help with daily functions, getting dressed, brushing teeth, taking a shower. She cannot be left alone, this causes her extreme anxiety. Her spoken words are often unintelligible, gibberish.
That said, there’s another side to this story. She is still filled with love and joy, greeting all we meet with a smile and “thank you, very good day!” She still loves to color, spending afternoons with crayons and coloring designs as she whistles happily. She is easily directed, no arguments about the right jacket to wear, going shopping, visiting friends, or what I’m serving for dinner.
It has been five years now since I became aware of my wife’s dementia. the mental deterioration process has been slow but all the little losses have added up. She now requires twenty four hour care, although much of the time little direct supervision is necessary. She is more confused and fragile, requiring my careful consideration in in response to her emotional needs.
Still, she is healthy and active, we enjoy our daily walks through town, visits to restaurants, phone conversations with family. But this will change, the disease will further consume her brain, there will come a time where meeting her needs will be more than I can do alone.
For now, I continue to do what we love with the woman I love for as long as we can.
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We hit another change with my father recently which are delusional thoughts which have caused stress and exhaustion for my mother. It is such a journey and for the people caring for their loved ones it’s important to look after them also. I know very well the journey ahead but there are always surprises. Thank you for sharing your experiences.
Ours is a difficult journey, and I find strength and encouragement in hearing that others are courageously walking the same path. thank you for sharing your thoughts and experiences.
You are an inspiration, Tio. I love how much you love your wife. I love your descriptions of your life together, and my heart aches for you both.
Thank you for your kind thoughts.