Have you ever been on a teeter totter, that long board balanced in the middle where kids sit at opposite ends and bounce each other up and down? If the two kids’ weights are about equal they can take turns levering the other into the air. However, if one kid is much heavier, the lighter one can find himself stuck up in the sky.
That’s me right now, stuck up in the air, in teeter totter purgatory, because my wife’s needs are overwhelming my own and I can’t get my feet back on the ground.
When I started this solo caregiving gig with my dementia afflicted wife, she was still quite functional. She could take care of her personal hygiene, lose herself for hours in painting projects, and sleep through the night. Then, painting became too complicated and we switched to coloring books. Now even coloring simple designs is more than her mind can handle and she constantly turns to me for attention.
Her nighttime neediness has also increased. Once a sound sleeper, she now gets up repeatedly and prods me awake to help her find and use the bathroom, to change clothes, to calm and comfort her after nightmares. This new pattern deprives me of needed rest, leaving me tired and less able to meet the increasing demands for her daytime entertainment.
The balance of my wife’s needs and my own is way out of whack. I need to get some heavy help for my side of the teeter totter. Once more, it’s time to adapt.
You might also enjoy: Yours to Count On, My Dementia Diary